Teen Chat

Teens, ages 13-18, are invited to join this virtual get-together to connect with other teens with Marfan, LDS, VEDS, and related conditions. This informal gathering provides an opportunity to talk about life, laugh, and everything in between.

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Caregiver Burnout

Caregivers are not typically prepared to deal with the impact of long-term care of a family member with a chronic, progressive condition. The emotional toll can be devastating. In this session, you'll hear about the value of connection, story-telling, and self-care and learn tools that you can incorporate into your day to improve your well-being and take care of yourself.

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Support Group for Dads

Share your concerns with other fathers of children and teens with a connective tissue condition (Marfan, VEDS, Loeys-Dietz, and related conditions). There are many ways to be a dad! Please join if fatherhood is meaningful to you.

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Support Group for Unaffected Partners/Spouses

Participate in this session to talk about challenges and coping strategies with other unaffected partners/spouses. Please note: Participation is open to any connective tissue condition, but is limited to unaffected partners/spouses.

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