Teens, ages 13-18, are invited to join this virtual get-together to connect with other teens with Marfan, LDS, VEDS, and related conditions. This informal gathering provides an opportunity to talk about life, laugh, and everything in between.
Caregivers are not typically prepared to deal with the impact of long-term care of a family member with a chronic, progressive condition. The emotional toll can be devastating. In this session, you&amp;amp;amp;#039;ll hear about the value of connection, story-telling, and self-care and learn tools that you can incorporate into your day to improve your well-being and take care of yourself.
Share your concerns with other fathers of children and teens with a connective tissue condition (Marfan, VEDS, Loeys-Dietz, and related conditions). There are many ways to be a dad! Please join if fatherhood is meaningful to you.
Participate in this session to talk about challenges and coping strategies with other unaffected partners/spouses. Please note: Participation is open to any connective tissue condition, but is limited to unaffected partners/spouses.