Two Disabled Dudes: Living Beyond Your Circumstances

Join us for this uplifting panel discussion led by the Two Disabled Dudes - two incredible motivational speakers, Kyle and Sean, who are also in the rare disease community. They are known for their insightful, authentic, and humorous conversations about living beyond our circumstances, no matter what those may be.; The panel features four members of our Marfan, LDS, and VEDS community, who will share their insights and perspectives and talk about living beyond their circumstances. A half hour will be dedicated to questions from participants.

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Treatment of Non-Aortic Aneurysms: Q & A

Aneurysms are most often observed in the aortic root, but can occur in other arteries throughout the body, especially in those affected by Loeys-Dietz syndrome and VEDS. Here is an opportunity to learn what you need to know about non-aortic aneurysms and get your questions answered.

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Chronic Conditions: Strategies for Coping

Just when you or a family member feel like you have adjusted to having a connective tissue condition and are effectively dealing with the medical issues, you face other complications. Join this session to learn more about coping with a chronic condition and how to prioritize medical issues on a daily, weekly, and monthly basis.

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