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Research

VEDS Upcoming Clinical Trial Q&A with Aytu BioPharma and Hal Dietz, MD (AR101- Enzastuarin)

VEDS Upcoming Clinical Trial Q&A with Aytu BioPharma and Hal Dietz, MD (AR101- Enzastuarin)

  • July 11, 2020

Nate Massari and Topher Brooke, with Aytu BioPharma, along with Hal Dietz, MD, will provide a brief background on the research leading up to the upcoming clinical trial for AR101 (Enzastaurin) for VEDS, and answer questions about steps in planning the trial and possible timeline.

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What’s New in Marfan Research?

What’s New in Marfan Research?

  • July 8, 2020

Hear the latest in Marfan research from leading investigators and ask your questions via chat.

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What’s New in Loeys-Dietz Syndrome Research Q&A

What’s New in Loeys-Dietz Syndrome Research Q&A

  • July 8, 2020

Ask your questions via chat to the scientists involved in genetics, bone, hearing, and tooth development research.  Please view pre-recorded video before attending live Q and A session.

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What is New in Stickler Research?

What is New in Stickler Research?

  • July 8, 2020

Learn about a new laser treatment to prevent retinal detachment and prevent blindness in Stickler syndrome.

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Disclaimer: The Marfan Foundation is a health advocacy organization. The Marfan Foundation does not provide medical advice or treatment. We are not a health care provider. It is important to realize that information provided by The Marfan Foundation is not meant as a replacement for proper care from a doctor, therapist, etc. Information provided by The Marfan Foundation is not a substitute for medical treatment or psychological care. It is vital that you talk with your health care providers regarding the diagnosis and treatment of Marfan syndrome and related disorders and your symptoms/features. Minors should consult with a parent/legal guardian when considering treatment and providers. Healthcare provider information is supplied solely by the providers themselves and is not checked or warranted by The Marfan Foundation. The Marfan Foundation provides contact information for health care providers who are known to have seen patients with Marfan syndrome and related disorders. The Marfan Foundation does not endorse or recommend individual health care providers. You are responsible for interviewing and selecting the practitioner. By requesting health care provider resources you understand and agree that The Marfan Foundation and its affiliates are not responsible for any providers’ services or lack thereof. | Design by Show Pro