Research – The Marfan Foundation

VEDS Upcoming Clinical Trial Q&A with Aytu BioPharma and Hal Dietz, MD (AR101- Enzastuarin)

July 11, 2020

Nate Massari and Topher Brooke, with Aytu BioPharma, along with Hal Dietz, MD, will provide a brief background on the research leading up to the upcoming clinical trial for AR101 (Enzastaurin) for VEDS, and answer questions about steps in planning the trial and possible timeline.

What’s New in Marfan Research?

July 8, 2020

Hear the latest in Marfan research from leading investigators and ask your questions via chat.

What’s New in Loeys-Dietz Syndrome Research Q&A

July 8, 2020

Ask your questions via chat to the scientists involved in genetics, bone, hearing, and tooth development research. Please view pre-recorded video before attending live Q and A session.

What is New in Stickler Research?

July 8, 2020

Learn about a new laser treatment to prevent retinal detachment and prevent blindness in Stickler syndrome.