Listen to a short presentation on children with neonatal Marfan syndrome and ask your questions via the chat box.
Are you concerned about your child&amp;amp;amp;#039;s weight? This session will provide the basics of good nutrition with emphasis on nutrient-rich and calorie-rich foods, ways to optimize digestion and other practical tips.
Caregivers are not typically prepared to deal with the impact of long-term care of a family member with a chronic, progressive condition. The emotional toll can be devastating. In this session, you&amp;amp;amp;#039;ll hear about the value of connection, story-telling, and self-care and learn tools that you can incorporate into your day to improve your well-being and take care of yourself.
Do you have questions about lung issues and Marfan, LDS, and VEDS? Watch Dr. Neptune's previous presentations in advance and then bring your questions to this session.