Share your concerns with other parents of children with neonatal Marfan syndrome. Please note: Participation is limited to parents of those with neonatal Marfan syndrome.
Learn about the options for family planning and hear real world experiences from couples with Marfan syndrome who have had children naturally, by adoption, through IVF, and using a surrogate. Ask your questions and get answers from a medical expert and people in our community.
Just when you or a family member feel like you have adjusted to having a connective tissue condition and are effectively dealing with the medical issues, you face other complications. Join this session to learn more about coping with a chronic condition and how to prioritize medical issues on a daily, weekly, and monthly basis.
Listen to a short presentation and get your questions answered about GI issues such as constipation, reflux, and avoiding perforations in adults with connective tissue conditions.