Katie Damman

Marfan Foundation - Teen Council Member

Hi, I’m Katie Dammann, I am a sophomore in high school and I live in Southwest Oregon. I play the alto saxophone, artistic roller skate, kayak, hike, camp, garden and take photos. I was diagnosed when I was 6 with an unknown connective tissue disorder similar to Loeys-Dietz Syndrome. I want to let other teens know that they are not alone and help them find activities that are safe and enjoyable!