Jan Petrella Lynch, MSN, RN

Director of the Help & Resource Center, The Marfan Foundation

As director of the Help & Resource Center, Jan provides help and support to individuals and families with various connective tissue conditions, such as Marfan syndrome, Loeys-Dietz syndrome and Vascular Ehlers-Danlos syndrome.  She facilitates professional and community connections and referrals and empowers individuals and families with knowledge, before, during and/or after diagnosis. Individuals and families can reach out to Jan at https://www.marfan.org/secure/ask, or call 516.883.8712 X126.