Francoise Steinbach

European Patient Advocacy Group (ePAG), Vice President of Association MARFANS - France

Françoise is the Vice President of the French patient organization Association MARFANS and a patient advocate within the European Reference Network for rare vascular diseases in the HTAD Working Group (heritable thoracic aorta diseases). She is also involved in the Marfan Europe Network as a treasurer and a member of the Coordination committee.